Top 5 Books Every Dementia Caregiver Should Read

Top 5 Books Every Dementia Caregiver Should Read

A personal guide to helpful reads that offer clarity, comfort, and practical support

I recently had a conversation with someone who told me, “I’m overwhelmed. There’s so much out there about dementia, I don’t even know where to start.”
I completely understood. Whether you’re just beginning the journey as a caregiver or have been living in this world for a while, the amount of information available can feel more confusing than helpful.

They asked me if I had any recommendations—books that cut through the noise and actually make a difference. I paused, thought for a moment, and then shared my go-to list. These are the books I return to again and again or recommend to every caregiver I meet.

Here are my top five:

1. Understanding the Changing Brain: A Positive Approach to Dementia Care

by Teepa Snow

This is the cornerstone of understanding dementia through a compassionate, person-centered lens. Teepa Snow’s Positive Approach to Care® (PAC) framework transformed how I see dementia. This book not only helps you understand why certain behaviors happen, but also teaches you how to respond in ways that reduce stress for both you and your loved one. It’s practical, clear, and rooted in empathy.

2. The 36-Hour Day

by Nancy L. Mace and Peter V. Rabins

This book is often called the “bible” for dementia caregivers—and for good reason. It’s thorough, accessible, and covers just about every topic a caregiver might face. Medical information, behavior challenges, legal planning, and emotional self-care—it’s all in here. I love that it speaks to both new caregivers and those navigating later stages of the disease.

3. Creating Moments of Joy

by Jolene Brackey

This one holds a special place in my heart. It reminds us that we may not be able to change the outcome of dementia, but we can change the experience. Brackey encourages caregivers to find small, meaningful ways to spark joy—whether it’s music, storytelling, or a simple shared smile. It’s not a manual; it’s a mindset. And it will change how you see each day.

4. Loving Someone Who Has Dementia: How to Find Hope While Coping with Stress and Grief

by Pauline Boss

This book is like a warm, honest conversation with someone who deeply understands what you’re going through. Boss explores the concept of ambiguous loss—that painful experience of grieving someone who is still physically present. It helped me make sense of emotions I didn’t even know I was carrying. If you’re feeling overwhelmed, emotionally stuck, or just tired, this book will meet you where you are.

5. Still Alice

by Lisa Genova

While technically fiction, I believe this novel belongs on every caregiver’s shelf. It offers a powerful, inside-out view of dementia—told from the perspective of a woman experiencing early-onset Alzheimer’s. It’s beautifully written, deeply moving, and incredibly insightful. If you want to better understand what your loved one might be going through emotionally, this is the book.

Final Thoughts

There’s no one-size-fits-all resource when it comes to dementia care, but these books have been guiding lights for me and so many others. Whether you’re looking for clinical guidance, emotional support, or just reassurance that you’re not alone—these reads are a great place to start.

If you’ve read any of these, or if you have other favorites, I’d love to hear from you. Let’s keep building a library of hope and help—together.

Want more resources?
Visit our Education page for workshops, support groups, and tools based on Teepa Snow’s Positive Approach to Care:
👉 https://dementiafamilysupport.org/education/